At We Are ILL, we consider MS to be somewhat of a "pitstop" for those who are ultimately diagnosed with NMOSD. In this virtual patient education program, medical experts specializing in neurology guide participants through a comprehensive exploration of Neuromyelitis Optica Spectrum Disorder (NMOSD) and Multiple Sclerosis (MS). Through patient advocate stories, informative presentations, and real-life case studies, attendees gain a deep understanding of the distinct characteristics, symptoms, diagnostic processes, and treatment options for each condition. Attendees leave with a clear grasp of how these autoimmune disorders affect the central nervous system, empowering them to make informed decisions about their healthcare. The first 50 RSVPs will receive a resource kit in the mail.

Participants include Dr. Annette Okai, a board-certified neurologist; Marion Jones, an NMOSD advocate and ambassador from the Sumaira Foundation; and Brianna Pearson, an MS advocate and Program Manager with We Are ILL.

Join us at the Work214 Coworking & Office Space for a fun and casual gathering of our amazing community members from the Dallas, Texas, area. This is a great opportunity to connect with fellow Black women living with MS and their support squads (spouses, caregivers, family and friends), share experiences, and build lasting relationships. Whether you've just discovered We Are ILL or are a longtime supporter, this meetup is the perfect place to meet like-minded individuals and have a good time. Don't miss out on this chance to be a part of our vibrant community!

Calling all those in the Detroit metro area! Join us for an unforgettable MS Family Night that we’re hosting with the Detroit Lions’ own Charles Harris! On March 28, we will be screening “Shirley” — starring Regina King as the first-ever Black congresswoman, Shirley Chisholm — at this event that combines cinema, community, and a cause.

Charles, a defensive end who has drafted in the first round of the 2017 NFL Draft, is a champion on and off the field. He also supports and raises awareness for multiple sclerosis, a cause near and dear to him, as his mother Deborah Clark bravely lives with MS.

This event is FREE, but remember — spaces are limited! Make sure to RSVP to secure your spot. Each attendee must register on their own.

Don’t miss out on the chance to support a great cause, enjoy a fantastic film, and maybe even snap a pic with Charles Harris!

Agenda:

6:00 pm Doors open (Refreshments, Photo Opps, Exhibit tables)

6:30 pm Welcome and Remarks 

7:00 pm Movie screening
9:00 pm Event Concludes

As we await a post-pandemic time, we'll stay safe and have another virtual #weareillmatic Members Meetup! This online social event, will include icebreakers, simple games and activities. This will give our community the connection that they've been missing and allow a deeper connection.

*** Registrants will receive confirmation emails and event login details closer to the event!***



But Wait, There’s More! Check out our Playlist!

Being Black and living with multiple sclerosis brings unique challenges and experiences. From scientific and clinical differences in the disease itself to stark inequities in the healthcare system and beyond. These reasons are why we’ve cultivated the WAI community to get access to this exclusive meetup featuring special guests-stay tuned and register for more info ;) . The Wellness Week Member Link Up is an opportunity to connect with others who understand the distinct experience of life with MS as a Black person.

**REGISTRATION NOW CLOSED**

But Wait, There’s More! Check out our Playlist!

With Tinder, Bumble, and Covid-19, dating in the 2020s is stressful. And, adding a chronic illness can cause an additional layer of anxiety to an already emotionally strenuous process. This IG Live conversation with celebrated relationship therapist LaTrease L. Nwosu will discuss navigating dating while living with a chronic illness including, if, when and how to disclose your diagnosis to your partner, intimacy while battling symptoms, and more.

We know that Black women have MS. But, why are certain healthcare providers so unwilling to acknowledge its obvious signs and symptoms when exhibited in Black women? Why do certain women go undiagnosed or misdiagnosed for months or, sometimes, even decades? In a conversation with the MS Specialist and neurologist Dr. Mitzi Williams, we will take a deep-dive into the factors and biases that have left many Black women living with MS undiagnosed or misdiagnosed. We will also discuss how we can equip patients with the techniques and strategies to advocate for oneself when it seems like no one is listening.